Position SummaryThe purpose of this position is to be a resource to patients on the Alexion Rare Disease patient journey and their liaison for information. The Patient Education Manager (PEM) is a key field-based role responsible for engaging the patient community, conducting dedicated patient education programs, partnering with local advocacy groups, local chapters of national advocacy groups, and supporting offices looking to understand OneSource offerings in more detail.
The PEM will provide patients disease state and product education, an overview on Alexion’s OneSource programs, support during the initial onboarding period, and logistical support between the patient/caregiver and available OneSource resources. The PEM will interact with patients/caregivers, nurses, pharmacists, ancillary staff, physicians, and advocacy/support groups to prevent and address non-clinical barriers to patient education and onboarding. They will also serve as the primary source for all regional patient community engagement activities.
Job Duties & ResponsibilitiesLocal Patient Engagement (70%)
- Create and manage regional patient engagement plans including patient educational events, community engagements, and face-to-face patient interactions
- Educate patients and caregivers on Alexion products and the available support
- Share materials on the disease, diagnosis, and treatment support with patients when required
- Educate prescribed patients and their caregivers regarding how to prepare for and what to expect during the infusion process for Alexion products, in accordance with product label utilizing Alexion approved resources
- When requested by internal partners, work with patients to support the resolution of patient logistical issues impacting treatment initiation
- Capture local business insights to enhance strategic plans and needed patient support
- Engage with specific patient and caregiver rare disease communities at a regional level
- Set up and participate in events and educational initiatives for patients and caregivers on behalf of Alexion per approved policy
- Build the rare disease network/relationships through local advocacy groups, rare disease related events, and attending conferences
- Partner with Alexion Patient Advocacy Team to drive engagement and partnership
Infusion Site of Care Education & Logistics (30%)
- In partnership with field colleagues, support the training of infusion centers around expectations setting for initiation process, drug storage/transportation, procedure, consistent experience delivery, and post-administration monitoring for Alexion products to ensure a seamless patient experience
- Responsible for supporting Patient Navigator with in-person resolution of non-reimbursement barriers (educational, logistical) as needed
- Develop and facilitate relationships with infusion nurses and other staff to support patients
- Partner and collaborate compliantly with other Alexion field teams on patient and HCP office education
- Minimum of 4 years total business experience in the healthcare or biotech industry
- Previous experience with IV infused products
- Ability to travel up to 80% within a territory is required; ability to travel to meetings/trainings/programs as necessary
- Valid driver's license and clean driving record
- Strong presentation skills in various settings (two to 150 people)
- BA/BS Degree is preferred; an advocacy, social work, nursing, counseling, or rare disease support background is desired (advanced degree a plus)
- At least 3 years field-based experience in account management, sales, or patient education preferred
- Must be familiar with the relevant legal and regulatory components of the pharmaceutical and biotech industry, rare disease experience a plus
- Familiarity with managed care and particularly physician administered biologic therapies
- Understanding of community engagement groups and non-profit organizations
- Empathy and strong communication and listening skills
- Experience dedicated to assisting patients/caregivers
- Demonstrated success working within cross-functional teams, including the ability to collaborate across functions in a field-based role
- Strong organizational skills and ability to adapt to change and react constructively in a high-energy and fast paced environment
- Demonstrates initiative, teamwork, and accountability
Some opportunities happen only once in a lifetime - like a job where you have the extraordinary opportunity to change lives. At Alexion, such opportunities arise through our unwavering mission to serve patients and families affected by rare diseases. These patients are our guiding star, and we act with integrity, urgency, and discipline because we know their lives are at stake.
Alexion is a global biopharmaceutical company focused on serving patients and families affected by rare diseases and devastating conditions through the discovery, development and commercialization of life-changing medicines. As a leader in rare diseases for more than 25 years, Alexion has developed and commercializes two approved complement inhibitors to treat patients with paroxysmal nocturnal hemoglobinuria (PNH) and atypical hemolytic uremic syndrome (aHUS), as well as the first and only approved complement inhibitor to treat anti-acetylcholine receptor (AchR) antibody-positive generalized myasthenia gravis (gMG) and neuromyelitis optica spectrum disorder (NMOSD). Alexion also has two highly innovative enzyme replacement therapies for patients with life-threatening and ultra-rare metabolic disorders, hypophosphatasia (HPP) and lysosomal acid lipase deficiency (LAL-D) as well as the first and only approved Factor Xa inhibitor reversal agent. In addition, the company is developing several mid-to-late-stage therapies, including a copper-binding agent for Wilson disease, an anti-neonatal Fc receptor (FcRn) antibody for rare Immunoglobulin G (IgG)-mediated diseases and an oral Factor D inhibitor as well as several early-stage therapies, including one for light chain (AL) amyloidosis, a second oral Factor D inhibitor and a third complement inhibitor. Alexion focuses its research efforts on novel molecules and targets in the complement cascade and its development efforts on the core therapeutic areas of hematology, nephrology, neurology, metabolic disorders and cardiology. Headquartered in Boston, Massachusetts, Alexion has offices around the globe and serves patients in more than 50 countries. Further information about Alexion can be found at: .
As a leading employer in our industry, Alexion is proud to offer a highly competitive package of base and incentive compensation as well as a comprehensive benefits program designed to support the health, wellness and financial security of our employees and their families. Benefits include group medical, vision and dental coverage, group and supplemental life insurance, 401(k) with company match, tuition reimbursement, relocation assistance and much more.